SAN DIEGO, Sept. 12, 2022
The panel will generate ideas and inspiration to build the foundational elements needed to make genomic health equitable, informed, and accountable
SAN DIEGO, Sept. 12, 2022 /PRNewswire/ -- Illumina, Inc. (NASDAQ: ILMN), a global leader in DNA sequencing and array-based technologies, today announced that it will convene a panel of leading visionaries, titled "Architecting Health's Radically New Infrastructure," as part of its inaugural Illumina Genomics Forum being held in San Diego from September 28 through October 1. This main-stage session, taking place on Friday, September 30, will feature renowned experts addressing the cornerstone challenges and opportunities facing the health industry, including genomics literacy, equity, public health, and pathogen preparedness.
Moderated by Joao Bosco Oliveira, head of Genomics at Albert Einstein Hospital, the panel will include:
"We are deeply humbled and absolutely thrilled to have these global leaders from across the genomics and health care ecosystem participating in our inaugural Illumina Genomics Forum," said Kathryne Reeves, chief marketing officer of Illumina. "Their collective vision for making genomic health a more inclusive, accessible standard of care is an inspiration to us all, and I look forward to the insights, perspectives, and transformative ideas they will share at the forum."
Illumina previously announced that former US President Barack Obama will headline the forum in a fireside chat on the evening of Wednesday, September 28. Twelve years after the passage of the Affordable Care Act, Obama will discuss the continued need for equity, accessibility, and smarter health care to Strengthen the human condition. Then, on September 30, Bill Gates, co-chair of the Bill & Melinda Gates Foundation, will deliver a keynote address on the remarkable potential of genomics to change the trajectory of global health.
Other IGF key themes include:
Illumina Genomics Forum will take place in San Diego from September 28 through October 1. For more information and to register for the conference, go to illuminagenomicsforum.com.About Illumina
lllumina is improving human health by unlocking the power of the genome. Our focus on innovation has established us as a global leader in DNA sequencing and array-based technologies, serving customers in the research, clinical and applied markets. Our products are used for applications in the life sciences, oncology, reproductive health, agriculture and other emerging segments. To learn more, visit www.illumina.com and connect with us on Twitter, Facebook, LinkedIn, Instagram, and YouTube.
View original content to get multimedia:https://www.prnewswire.com/news-releases/illumina-genomics-forum-to-convene-leading-visionaries-to-explore-architecting-healths-radically-new-infrastructure-301621848.html
SOURCE Illumina, Inc.
When Patricia Anderson got COVID-19 at the very start of the pandemic, she was lucky in a sense. She never went to the hospital, despite her body temperature dropping to 93 degrees. In March 2020, many patients were told not to seek emergency care unless they had a fever of 104 degrees or higher. COVID-19 was a newly emerging threat and at the time, there were few avenues of treatment.
While the worst of the symptoms eventually faded, Anderson never really got better. She is one of the estimated 7 to 23 million Americans with long COVID — a condition which can encompass symptoms such as respiratory distress, cough, “brain fog,” fatigue, and malaise, that last 12 weeks or longer after initial infection.
These ongoing symptoms, and resulting impairments, are a long term challenge as both employers and workers navigate an ever-mutating virus.
The Centers for Disease Control and Prevention found that one in five COVID survivors younger than 65 experienced at least one incident that might be related to previous COVID-19 infection. Among those 65 and older, the rate was one in four. Their data also show that nearly three times as many people age 50 to 59 currently have long COVID than those 80 or older.
Experts believe that older cohorts may have more resistance thanks to a higher proportion being fully vaccinated and boosted; younger cohorts may not be as protected. Post-COVID conditions are found more often in people who had severe illness, but anyone who has been infected can experience these conditions, even those with mild or asymptomatic COVID-19.
One of the challenges in diagnosing long COVID is that there is no diagnostic test and symptoms may also be due to other underlying health problems.
However, an analysis from the nonprofit Solve ME/CFS Initiative, which supports research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), long COVID and other post-infection diseases, estimates that long COVID affects 10% to 30% of those who were infected; and over half of patients experience lingering symptoms six months after initial infection.
Millions could have this disease for their lifetime.
Fatigue is the most common symptom reported (80%), followed by post-exertion malaise (72%) and brain fog (58%), according to the organization.
Despite her battle with the ongoing effects of the virus, Anderson, an emerging technologies specialist at the University of Michigan, never really stopped working. “I was worried about not having enough sick leave,” she said.
Her son has autism and she needed to be there as his caregiver. But, constant fatigue and an inability to walk more than a handful of steps before needing to rest took a toll on her mental health as well. “I was a very physically active person, I was a high achiever, I walked everywhere.”
Another major challenge was the ongoing brain fog, which Anderson said she finally started coming out of in December 2021, after about 20 months of struggling with seemingly simple tasks like completing full sentences.
“When it was the worst, I did not realize how bad it was. I wasn’t capable of understanding so much,” she said. “One of the scarier times was when I wasn’t able to remember my son’s name.”
Anderson has been fortunate enough to be able to work full time from home during the pandemic; she’s able to take breaks and rest when the extreme tiredness or cognitive issues interfere with her work. But the University of Michigan now wants employees back in their offices.
And that’s tough for the 65-year-old, who has blogged about her two-plus year ordeal.
Anderson has recovered enough to take the bus to work one day a week. Her immediate supervisors have been very understanding, and have made accommodations, like allowing her to take breaks or lay down.
“It’s not that brain fog doesn’t happen anymore. But I’ve learned the things that I need to do, like take short breaks whether or not I feel tired, and I have learned the warning signs,” she explained. But she’s not yet ready to return in-person full time.
Anderson knows she’s more fortunate than many other employees. The nature of her job allows her to still work from home and management is willing to work with her. Many people don’t have those options.
At the same time, employers are trying to understand what they need to do to care for individuals with long COVID, whether it’s benefit programs, disability management, paid leave, or short term disability, according to Bryon Bass, a senior vice president of disability and absence management at Sedgewick Corporation, one of the largest third-party administrators of employee benefits.
“There are no standards, there are no protocols and people are just really struggling to understand what they can do and what they should be doing,” he said.
The number of disabled individuals due to long COVID could potentially be catastrophic for some industries. Anywhere from seven to 14 million U.S. workers could have symptoms so severe that they’re going to be disabled from their job in some form, Bass said.
Currently, individuals with long COVID must be accommodated under the Americans with Disabilities Act (ADA) according to the Department of Health and Human Services, “if it substantially limited one or more major life activities.”
Additionally, guidance from the Equal Employment Opportunity Commission reinforces that long COVID should be considered as a disability under ADA definitions: real physical or mental impairment which substantially limit a major life activity; a history or record of an real disability (such as cancer that is in remission); or regarded as an individual with a disability by the employer.
One caveat: not every impairment will constitute a disability under the ADA. The ADA uses a case-by-case approach to determine if an applicant or employee meets any one of the three above definitions of disability.
Despite very real disabilities, those with long COVID are not currently eligible to apply for Social Security Disability benefits, which by definition requires someone to be unable to work in any occupation due to a condition that will last at least a year.
There are a lot of people who may not have been clinically diagnosed with COVID-19 but have long COVID symptoms, said Terri Rhodes, CEO of the Disability Management Employer Coalition.
The organization has established a think tank which includes medical experts, government officials and absence and disability management professionals to discuss the challenges to both employers and employees.
The goal is to educate employers and the insurance community about long COVID and provide some guidelines on how employers can accommodate workers and what laws they need to be aware of.
“We’re trying to make sure that employers don’t just get stuck into thinking that there has to be some definitive diagnosis, because a lot of times it doesn’t exist,” said Rhodes. “And that’s what a lot of us are struggling with.” She predicted this disease will result in a major shift in how disability is managed in the U.S.
In addition to managing workers like Anderson who have the ability to work remotely, employers must also learn to accommodate everyone from CEOs and CFOs who have lost some critical thinking and decision-making abilities to line workers who require frequent breaks for post-exercise malaise and fatigue.
In some ways, it’s similar to how an employer might accommodate a person with Parkinson’s disease or ALS, but may now be dealing with dozens, or even hundreds of people at a time.
“We have to think differently about how we’ve been providing accommodations, especially for individuals in manufacturing and service and retail environments.” said Bass. “How do we provide an inclusive environment for them, so that they can continue to be productive, continue to work, continue to contribute and do all of the things that we naturally want to do?”
When book editor and writer Jane Isay, now 83, contracted a mild case of COVID in January 2021, brain fog was a constant companion. She had trouble writing more than a sentence or two at a time. It could take her a full week to write a one-page letter. “It was like I’d never written anything before,” she said. While her clients and colleagues were understanding, Isay felt she was letting them down.
Due to her age, many around her suspected the start of dementia. “I knew in my gut it wasn’t Alzheimer’s,” Isay said. “What I did know is that I wasn’t as sharp as I had been and that something was missing. I was very sad.”
Finally, in May, 2022, the fog began to lift. “I didn’t know what I had lost until I found it again,” she said. Isay is now back to writing and editing and is working on her next book, albeit a little more slowly than before.
A link between long COVID and Alzheimer’s disease is a real concern for employers, according to Bass. Researchers at the Cleveland Clinic found an overlap between COVID-19 and brain changes common in Alzheimer’s. Other studies have found similar results, raising questions about whether some long-COVID sufferers may be at higher risk for Alzheimer’s disease (AD) or other neurodegenerative diseases over time.
The number of people with Alzheimer’s disease was already projected to increase, due to the sheer size of the aging baby boom population. Now researchers are concerned that this number may skew much higher due to the lingering effects from long COVID.
As scientists struggle to understand the long-term consequences of this virus, employees and employers are struggling to navigate the nuances of laws like the ADA the Family and Medical Leave Act.
Employers and employees will have to work together to find solutions that work for everyone, according to Rhodes. Long COVID is not just a health issue, it’s also ultimately a workforce issue. It’s one that significantly affects older workers, which can be devastating on many levels, since health insurance is so often tied to employment. It’s uncharted territory, requiring good communication, a willingness to be flexible, and teamwork.
Below are links to additional resources related to this story.
New York–based journalist Liz Seegert has spent more than 30 years reporting and writing about health and general news subjects for print, digital and broadcast media. Her primary beats currently include aging, boomers, social determinants of health and health policy. She is Topic editor on aging for the Association of Health Care Journalists. Her work has appeared in numerous media outlets, including Consumer Reports, AARP.com, Medical Economics, the Los Angeles Times and the Hartford Courant.
This article is reprinted by permission from NextAvenue.org, © 2022 Twin Cities Public Television, Inc. All rights reserved.
More from Next Avenue:
HP has put forward a small robot it says can dramatically speed up construction work, by autonomously printing guidelines straight from the blueprints onto the floor. Rugged, roadworthy and extremely accurate, Siteprint is a super-quick layout tool.
The robot replaces the time-consuming manual process of site layout, using a variety of different inks to place precise lines, exact curves and faithful reproductions of complex shapes on all kinds of floors, from porous surfaces like concrete and plywood to terrazzo, vinyl or epoxy.
It doesn't require a perfectly smooth or clean floor – indeed, it can handle a certain degree of surface irregularity and obstacles up to 2 cm (0.8 in) high. It runs built-in obstacle and cliff drop sensors for fully autonomous operation, and will work around barriers even if they're not in the plans.
As well as layout lines, it's capable of printing more or less whatever else you need on the floor too, including text notes. Operators set it up using cloud-based tools for job preparation, fleet management and tracking, and can run it on site with a touch-screen tablet and a tripod-mounted "totalstation."
“The existing manual layout process can be slow and labor intensive,” said Albert Zulps, Director of Emerging Technology at Skanska - a global construction and development company currently using the SitePrint system for two of its US projects. "Despite being done by specialists, there is always the risk of human error, which can result in costly reworks. Layout experts are a scarce resource who add a lot of value in terms of planning and strategy, but often end up dedicating most of their time to manual execution. HP SitePrint lets us do more with less, helping reduce schedules thanks to a much faster layout process, and allowing senior operators to focus on other critical activities like quality control.”
While HP hasn't announced pricing, we assume the printer robot itself will be surprisingly cheap, but the ink's gonna be a killer. Yuk yuk.
Check out Siteprint in the video below.
HP SitePrint Skanska testimonial | HP
HP laptops offer something for you, whether you're a creative looking to edit photos, a gamer in search of aor a student in need of a small, lightweight laptop.
Many of the best HP laptops have features designed for remote or hybrid work such asand microphones, , longer battery life, and the .
Like other PC makers such as Dell, Lenovo, Acer and Asus, HP is in the midst of updating the processors in its laptops and two-in-ones. That means Intel-based models are moving from 11th-gen to 12th-gen CPUs, while AMD Ryzen systems are switching from 5000-series chips to 6000-series. It also means it's generally a good time to look for deals on older models of the best HP laptops. However, we've also seen big performance improvements with the new processors. An updated model might cost a little more but will add to the overall longevity.
Spectre is HP's top consumer laptop line so you're getting the best of the best with this 16-inch two-in-one.
Of course, a premium two-in-one like the Spectre x360 comes at a relatively high price; it starts at around $1,200. The top-end configuration we reviewed was good but not great considering its $2,030 price. This is definitely one we recommend getting with the 12th-gen Intel processors and Intel Arc graphics if you're going to go all-in. Read our HP Spectre x360 16 review.
HP's Victus 16 is a surprisingly robust and powerful gaming laptop that keeps up with the latest games at a more affordable price. Compared to HP's high-end Omen gaming laptop line, the Victus is more of an all-purpose laptop but still configured for gaming with a price starting at less than $1,000. HP offers several configurations with graphics chip options ranging from Nvidia's entry-level GeForce GTX 1650 up to a midrange RTX 3060 or AMD Radeon RX 6500M. We like almost everything about it except for its flimsy display hinge and underwhelming speakers. Read our HP Victus 16 review.
There are plenty of convertible Chromebooks, where the screen flips around to the back of the keyboard so you can use it as a tablet. But Chrome tablets with removable keyboards like the HP Chromebook x2 11 are still a rarity. It offers long battery life and performance that rises (slightly) above the competition. The main downside is that it's expensive; the model we reviewed is $599. However, that price did include both the keyboard cover and USI pen and it's regularly on sale for $200. If you're interested make sure to wait for one of those deals. Read our HP Chromebook x2 11 review.
If you're making a laptop aimed at creatives, it's not enough to just put discrete graphics and a strong processor in a slim body. The extra performance really should be paired with a good screen, and that's what you get with the HP Envy 14. The laptop's 16:10 14-inch 1,920x1,200-pixel display not only gives you more vertical room to work, but is color-calibrated at the factory and covers 100% of the sRGB color gamut. The result: a well-rounded option for creatives looking for on-the-go performance at a reasonable price. This model is due for a refresh, though, so keep an eye out for updated models. Read our HP Envy 14 review.
This copy is for your personal, non-commercial use only. Distribution and use of this material are governed by our Subscriber Agreement and by copyright law. For non-personal use or to order multiple copies, please contact Dow Jones Reprints at 1-800-843-0008 or visit www.djreprints.com.
New Jersey, NJ -- (SBWIRE) -- 10/09/2022 -- Latest Study on Industrial Growth of Worldwide Health Insurance Exchange Market 2022-2028. A detailed study accumulated to offer Latest insights about acute features of the Worldwide Health Insurance Exchange market. The report contains different market predictions related to revenue size, production, CAGR, Consumption, gross margin, price, and other substantial factors. While emphasizing the key driving and restraining forces for this market, the report also offers a complete study of the future trends and developments of the market. It also examines the role of the leading market players involved in the industry including their corporate overview, financial summary and SWOT analysis.
The Major Players Covered in this Report: Accenture, CGI, Deloitte, IBM, Infosys, MAXIMUS, Oracle, Xerox, Connecture, Cognosante, HCentive, Hexaware Technologies, HP, Inovalon, Inc., KPMG, Microsoft, Noridian Healthcare Solutions, Tata Consultancy Services (TCS), Wipro, Health Insurance Exchange markets by :, In North America, In Latin America, Europe, The Asia-pacific & Middle East and Africa (MEA)
Worldwide Health Insurance Exchange Market Study guarantees you to remain / stay advised higher than your competition. With Structured tables and figures examining the Worldwide Health Insurance Exchange, the research document provides you a leading product, submarkets, revenue size and forecast to 2027. Comparatively is also classifies emerging as well as leaders in the industry.
Click To get trial PDF of Worldwide Health Insurance Exchange Market (Including Full TOC, Table & Figures) @ https://www.htfmarketreport.com/sample-report/3707010-worldwide-health-insurance-exchange-market
This study also covers company profiling, specifications and product picture, sales, market share and contact information of various regional, international and local vendors of Worldwide Health Insurance Exchange Market. The market proposition is frequently developing ahead with the rise in scientific innovation and M&A activities in the industry. Additionally, many local and regional vendors are offering specific application products for varied end-users. The new merchant applicants in the market are finding it hard to compete with the international vendors based on reliability, quality and modernism in technology.
Read Detailed Index of full Research Study at @ https://www.htfmarketreport.com/reports/3707010-worldwide-health-insurance-exchange-market
The titled segments and sub-section of the market are illuminated below:
In-depth analysis of Worldwide Health Insurance Exchange market segments by Types: Software & Hardware
Detailed analysis of Worldwide Health Insurance Exchange market segments by Applications: Government Agencies, Third Party Administrators (TPAs) & Health Plans or Payers
Major Key Players of the Market: Accenture, CGI, Deloitte, IBM, Infosys, MAXIMUS, Oracle, Xerox, Connecture, Cognosante, HCentive, Hexaware Technologies, HP, Inovalon, Inc., KPMG, Microsoft, Noridian Healthcare Solutions, Tata Consultancy Services (TCS), Wipro, Health Insurance Exchange markets by : In North America, In Latin America, Europe, The Asia-pacific & Middle East and Africa (MEA)
Regional Analysis for Worldwide Health Insurance Exchange Market:
- APAC (Japan, China, South Korea, Australia, India, and Rest of APAC; Rest of APAC is further segmented into Malaysia, Singapore, Indonesia, Thailand, New Zealand, Vietnam, and Sri Lanka)
- Europe (Germany, UK, France, Spain, Italy, Russia, Rest of Europe; Rest of Europe is further segmented into Belgium, Denmark, Austria, Norway, Sweden, The Netherlands, Poland, Czech Republic, Slovakia, Hungary, and Romania)
- North America (U.S., Canada, and Mexico)
- South America (Brazil, Chile, Argentina, Rest of South America)
- MEA (Saudi Arabia, UAE, South Africa)
Furthermore, the years considered for the study are as follows:
Historical year – 2016-2021
Base year – 2021
Forecast period** – 2022 to 2027 [** unless otherwise stated]
**Moreover, it will also include the opportunities available in micro markets for stakeholders to invest, detailed analysis of competitive landscape and product services of key players.
Buy Latest Edition of Market Study Now @ https://www.htfmarketreport.com/buy-now?format=1&report=3707010
Key takeaways from the Worldwide Health Insurance Exchange market report:
– Detailed considerate of Worldwide Health Insurance Exchange market-particular drivers, Trends, constraints, Restraints, Opportunities and major micro markets.
– Comprehensive valuation of all prospects and threat in the – In depth study of industry strategies for growth of the Worldwide Health Insurance Exchange market-leading players.
– Worldwide Health Insurance Exchange market latest innovations and major procedures.
– Favorable dip inside Vigorous high-tech and market latest trends remarkable the Market.
– Conclusive study about the growth conspiracy of Worldwide Health Insurance Exchange market for forthcoming years.
What to Expect from this Report On Worldwide Health Insurance Exchange Market:
1. A comprehensive summary of several area distributions and the summary types of popular products in the Worldwide Health Insurance Exchange Market.
2. You can fix up the growing databases for your industry when you have info on the cost of the production, cost of the products, and cost of the production for the next future years.
3. Thorough Evaluation the break-in for new companies who want to enter the Worldwide Health Insurance Exchange Market.
4. Exactly how do the most important companies and mid-level companies make income within the Market?
5. Complete research on the overall development within the Worldwide Health Insurance Exchange Market that helps you elect the product launch and overhaul growths.
Enquire for customization in Report @ https://www.htfmarketreport.com/enquiry-before-buy/3707010-worldwide-health-insurance-exchange-market
Detailed TOC of Worldwide Health Insurance Exchange Market Research Report-
– Worldwide Health Insurance Exchange Introduction and Market Overview
– Worldwide Health Insurance Exchange Market, by Application [Government Agencies, Third Party Administrators (TPAs) & Health Plans or Payers]
– Worldwide Health Insurance Exchange Industry Chain Analysis
– Worldwide Health Insurance Exchange Market, by Type [Services, Software & Hardware]
– Industry Manufacture, Consumption, Export, Import by Regions (2016-2021)
– Industry Value ($) by Region (2016-2021)
– Worldwide Health Insurance Exchange Market Status and SWOT Analysis by Regions
– Major Region of Worldwide Health Insurance Exchange Market
i) Worldwide Health Insurance Exchange Sales
ii) Worldwide Health Insurance Exchange Revenue & market share
– Major Companies List
Thanks for practicing this article; you can also get individual chapter wise section or region wise report version like North America, MINT, BRICS, G7, Western / Eastern Europe or Southeast Asia. Also, we can serve you with customize research services as HTF MI holds a database repository that includes public organizations and Millions of Privately held companies with expertise across various Industry domains.
For more information on this press release visit: http://www.sbwire.com/press-releases/health-insurance-exchange-market-may-see-a-big-move-ibm-infosys-hp-1362171.htm
Nidhi BhawsarPR & Marketing Manager
HTF Market Intelligence Consulting Pvt. Ltd.
Email: Click to Email Nidhi Bhawsar
00;00;08;19 - 00;00;11;29
Thanks for joining Health Affairs This Week. I'm Vabren Watts.
00;00;12;27 - 00;00;13;19
And I'm Ryan Tanap.
00;00;14;17 - 00;00;39;22
You know Health Affairs October issue focuses on disability and health. As part of the issue we are including artwork to accompany some of the content by residents from Art Enables, an art gallery, a vocational arts program in Washington D.C. If you haven't checked it out yet today's cohost Ryan Tanap wrote a Forefront article on Art Enables and had the pleasure of speaking with some of the residents artists and staff.
00;00;40;09 - 00;01;04;11
Yes, that's right, Vabe. And I just wanted to direct listeners to our Health Affairs Sunday Update newsletter that you are welcome to subscribe to, as well as social media, specifically LinkedIn, where we're featuring five artists from Art Enables. We purchase their artwork and will be featuring a brief profile on each of them as well as the artwork that we purchase.
00;01;04;11 - 00;01;14;29
So please check that out. And to continue the conversation, we're joined today by Tony Brunswick, executive director at Art Enables. Tony, thanks so much for joining us.
00;01;14;29 - 00;01;17;18
Thank you. It's an honor to be here. I appreciate the invitation.
00;01;17;26 - 00;01;22;29
Oh, absolutely. So if we could get started, what is Art Enables, Tony?
00;01;23;07 - 00;01;42;19
Yeah, I'm very happy to talk about that. So Art Enables is a professional art gallery and studio dedicated to amplifying the careers of artists with disabilities. And we do this by providing artists with the platform to be able to create, exhibit and earn income from their artwork.
00;01;43;01 - 00;01;49;05
So, Tony, what type of guidance does Art Enables provide to artists on how to set rates for artwork?
00;01;49;14 - 00;02;19;26
Yeah, so we do a lot of work supporting artists in the art, the creation phase of the artwork, the marketing phase and the exhibition and sale phase. And the pricing of artwork is tricky for any working, emerging and professional artists. And so we sit down with the artist and talk about what the DC market typically brings for artwork, and discuss how artists want to be able to price and market their work.
00;02;21;00 - 00;02;34;18
There's a consistent pricing band that the studio typically operates within, but we want to make sure we're honoring the artists, the time they put into the work, and the work itself by pricing it at a respectable price.
00;02;35;10 - 00;02;42;26
And just to follow up on that, do the artists get to have some say in that price? Yes.
00;02;42;26 - 00;03;07;16
Yeah, absolutely. You know, some artists prefer to allow the studio to manage that aspect of sales. And then we have other artists that we check in with and deliver us advice and feedback on what they think the work should be valued at. And so it's a conversation across the studio with the artists on what the ultimate price ends up being for any individual work.
00;03;08;13 - 00;03;32;04
Great. Thank you. So we read a 2017 NPR article that you and I had talked about previously before I wrote the article. And in that article you stated that when an artist joins Art Enables through the Department of Disability Services in DC, about 70% of the cost is covered by a waiver program funded by Medicare and Medicaid. Is that still the case?
00;03;33;14 - 00;04;08;12
Yes and no. No, in that since the pandemic, it's affected our programing, which affects how we're working with Medicaid and how we're working with the DC Department of Disability Services. So our income through providing Medicaid waiver services has declined overall. Also that 70% even prior to the pandemic, it is true that it covered 70% of our costs. I would say that with, you know, the economy in the way that it is now, everything is costing more as an organization.
00;04;08;12 - 00;04;29;02
It costs more to retain people. It costs more to run programs that even if we were billing at the same levels or working with Medicaid waiver programs at the same levels today as we were prior to the pandemic, it would now be less than that 70%. If we tried to be 100% funded by what we receive through our Medicaid partnership,
00;04;29;02 - 00;04;52;10
we would have to make some drastic changes as an organization to be able to work within the Medicaid funding. As it stands now, we do a lot of outside fundraising and development activities to help offset the costs that we think should and need to go into supporting the artists' career development through our program model.
00;04;53;07 - 00;05;13;21
So you mentioned that the pandemic significantly affected funding for Art Enables. And you know, that's the case for organizations across the board. We'd be curious to hear how did Art Enables specifically close the funding gap? Did you have to outreach to existing groups of supporters or did you find, you know, new, new funders?
00;05;13;21 - 00;05;46;20
So, you know, for so many people, when the pandemic hit, it was just such a difficult blow. And I think for folks that work with Medicaid funded programs, it was especially difficult. We lost about 95% of our Medicaid funding once the pandemic hit. So it was a pretty drastic blow to us. But fortunately, we were able to offset 100% of those losses through other revenue streams, through individuals who just stepped up their giving, Art Enables is a nonprofit organization.
00;05;46;20 - 00;06;17;23
So there were a lot of individuals who stepped up their financial support of the organization. We found New Foundation and public funders, state and government funders that we were able to apply for grants and receive that. And then we also did take advantage to the extent we could of available emergency COVID relief funds, whether at the federal level through the PPP programs or at the state level where there may have been state based relief programs available.
00;06;18;00 - 00;06;43;16
So a combination of all of that and being extremely resourceful and trying to find additional funds, we were able to withstand the financial impact of COVID. So we were able to continue fully supporting every individual that was receiving services through our studio, through the entire duration of the pandemic, which we're really grateful and proud of.
00;06;44;14 - 00;06;51;26
That's fantastic. Was there anything else that you think we should know that we actually didn't ask about today?
00;06;52;25 - 00;07;23;27
I would just say for those listeners who are new to Art Enables, I would invite you to check out our website. We have incredibly talented artists working in the studio who have built an incredible following of collectors and art buyers. And the work really stands on its own against, alongside their peers in the visual arts space. Art Enables has been around for 21 years.
00;07;23;27 - 00;07;42;28
Artists have sold over a million and a half dollars of artwork and merchandise in that time. And it's just, it's a really exciting program and it's an incredible display of talent that we just want people to know about, and to see, and experience, and if you like to buy.
00;07;44;14 - 00;08;07;25
That's amazing. You know, the artwork is once again, it is featured on the disability and health issue. Check out Ryann's article, which she has links to the profiles and backgrounds of the artists as well as some more art. And if you check out just the issue of the disability and health, even on our main cover, there is art featured from Art Enables.
00;08;08;08 - 00;08;27;16
You know, Tony, thank you so much for joining us for Health Affairs This Week. And thanks to our listeners for another episode. If you like this episode, please tell a friend, leave a review, or subscribe wherever you listen to your podcast. Once again, for Health Affairs, I'm Vabren Watts.
00;08;28;12 - 00;08;29;17
And I'm Ryann Tanap.
00;08;29;28 - 00;08;45;13
00;00;08;24 - 00;00;18;17
Hello and welcome to another episode of Health Affairs This Week, the podcast where Health Affairs editors go beyond the headlines to explore the health policy news of the week. I'm Ellen Bayer.
00;00;19;12 - 00;00;46;28
And I'm Leslie Erdelack. And today we are taking you inside the pages of the October issue. It was released earlier this week, and it's one of those special issues where all the content is focused on one theme and this month, for the first time ever, we publish an issue dedicated to exploring the relationship between disability and health. So Ellen, it's out right now.
00;00;47;07 - 00;01;11;29
Everyone can and you should go check it out because thanks to the generous support provided by the Ford Foundation, the Robert Wood Johnson Foundation and the MacArthur Foundation, you can read everything free of charge. And we have, I think, some really important and thought provoking pieces in this collection, we'll of course drop a link to the landing page for the issue in the show notes.
00;01;13;03 - 00;01;32;22
But these types of thematic issues, you know, they are really long time in the making. And Ellen, you're in a really unique position, I think, because you've actually been there from the start as the editor who was assigned to oversee kind of the development of this issue. So what was that experience like?
00;01;33;22 - 00;02;07;10
Yeah, thanks, Leslie. So disability and health is an issue that's personally very meaningful to me, based on experiences in my own family. So I'm especially grateful to have worked on this issue and as we always do for theme issues, we started planning about a year ago and we brought together scholars and advocates from all around the country for a planning meeting, and we were so fortunate to have had two fantastic theme issue advisors, Lisa Iezzoni of Harvard and Massachusetts General Hospital and Javier Robles of Rutgers.
00;02;07;21 - 00;02;29;15
So we talked about a lot of things in that meeting, and I just want to highlight a few ideas that especially resonated with me. And the first is the issue of universality. I mean, disability affects all of us in one way or another at some point in our lives, whether directly in our own lives or through the experience of family members or friends.
00;02;29;28 - 00;02;55;09
And as Lisa Iezzoni says in her overview paper, in the theme issue, the disability community is a minority group that anyone can join in a flash. The second idea is the concept of inclusivity, and there are many kinds of disability. And often when people think about disability, they may picture someone in a wheelchair, for example. And of course, that's one type of disability, mobility disability.
00;02;55;19 - 00;03;24;13
But as we think about disability and as researchers try to develop tools for data collection and policymakers try to develop policies and programs to meet the needs of people with disability, it's important to take an inclusive view and to account for all kinds of disability like vision and hearing disabilities and intellectual and developmental disability, and also disabilities that are sometimes referred to as invisible, like ADHD and autism and psychological disability.
00;03;25;08 - 00;03;29;06
And the third theme I want to point out is the idea of flexibility in language.
00;03;29;23 - 00;03;54;14
Yeah, I'm so glad you brought that up, Ellen, because this was on my mind a lot when we were working on this issue. And if you read it, you know, you'll notice that the authors of these papers alternate between using the phrase people with disabilities and the term disabled people. And I used to do a lot of work on substance abuse and treatment issues before I came here.
00;03;54;14 - 00;04;28;23
And it was always about emphasizing person first language. When you're talking about a person in recovery or a person with opioid use disorder. And, you know, it's this idea of putting the person before the diagnosis so that you're not, you know, perpetuating the stigma around addiction and those sorts of things. And so I think I carried with me this way of thinking in approaching disability, you know, assuming that the preference for person first was universal.
00;04;29;03 - 00;04;39;23
But that's actually not true. And there's actually a great deal of variation in the preferred language among people with disabilities, right?
00;04;40;10 - 00;05;06;19
That's right, Leslie. And so as Lisa Iezzoni and others have explained in the 1990s, after the enactment of the Americans with Disabilities Act, the use of this person first language, as you mention, referring to people with disabilities, was the preferred approach in the disability community. And then as time went on, there was a shift in preferences, particularly among younger people with disabilities, to use identity first language and refer to disabled people.
00;05;06;29 - 00;05;19;13
So as you pointed out, you'll see both of these approaches in the theme issue articles, and that reflects different preferences in the disability community. So Leslie, you were also involved as a senior editor for the same issue. What are some of the articles that stood out most to you?
00;05;20;06 - 00;05;49;19
Yeah, it's a great issue, but I keep coming back to this pair of articles focusing on physicians. And the first one is by Tara Lagu and colleagues. And you can actually hear her talk about the study with our Editor-In-Chief on this week's episode of A Health Podyssey. But in this article, they describe what they learned from holding focus groups to try to understand the barriers that doctors are facing as they care for people with disabilities.
00;05;49;19 - 00;06;19;25
And they talk about some of the challenges related to providing physical, of course, and other accommodations for these patients. But I think the really troubling finding here has to do with the discriminatory attitudes toward people with disabilities. So some doctors described the ways that they discharge and discourage people from being seen in their practices or, you know, otherwise sort of finding ways to deny them care.
00;06;19;25 - 00;06;43;26
And, you know, the point that these authors make, you know, what they're arguing is that these kinds of attitudes in the health care setting toward people with disabilities is really inconsistent with the mission of medicine and public health. So I think that's a really powerful takeaway. And then the second article by Lisa Meeks and her colleagues actually looks at how physicians themselves are being mistreated.
00;06;43;26 - 00;07;31;18
And so they surveyed physicians and found that compared to their non-disabled peers, physicians with disabilities had a higher likelihood of experiencing every type of mistreatment and harassment, including verbal threats and physical harm from coworkers and patients. And physicians with disabilities are already underrepresented in medicine as it is. And this paper makes the case for reexamining not only the types of workplace protections in place, but also how ableism and ableist attitudes are affecting the physician workforce and so these articles, and I would say most of the papers in the issue really kind of suggest that it's not only health care in the practice of medicine that we need to change, we need to work to change
00;07;32;09 - 00;07;58;22
so many systems at the same time to address, you know, systemic inequalities for people with disabilities. And I would say for me, one of the most important takeaways from this issue is that people who have disabilities need to be included as leaders in this work, particularly disabled people from groups that are historically marginalized. Right. And this is actually one of the key principles of the disability justice movement.
00;07;59;00 - 00;08;22;03
Leslie, I'm really glad you mentioned the issue of disability justice as Alina Engelman and her coauthors explain in their paper. Disability Justice calls for a movement that involves working for structural changes similar to what's needed to achieve health equity. And if I had to name one concept, I would say that equity is the common thread that weaves together all of the content in this issue.
00;08;22;25 - 00;08;48;27
The overview paper by Monika Mitra and her coauthors makes the point that disability is not the same as poor health. And even though disability can sometimes make health conditions worse, it's important to understand that there are lots of structural and systemic factors like inequities in employment, in education, housing and the health care system that lead to significant disparities in health and health care for people with disabilities.
00;08;49;16 - 00;09;24;05
And we've seen this particularly during the pandemic. Of course, it didn't begin with the pandemic, but it became readily apparent during the pandemic. Paper by Ilhom Akobirshoev and colleagues shows evidence of delayed care and unmet needs among people with disabilities during the first year of the pandemic. Another paper by Willi Horner-Johnson and her coauthors reported that people with disabilities were more likely than people without disabilities to have smoked during pregnancy and have delayed prenatal care, premature births and infants with low birth weight.
00;09;24;15 - 00;09;41;01
And the authors pointed out that disability often isn't identified in clinical settings and people with disabilities who are of childbearing age, often aren't asked about plans to become pregnant. So there are lots of missed opportunities for things like preconception planning and counseling for smoking cessation.
00;09;41;16 - 00;10;09;26
Another thing that's really concerning is the fact that we just unfortunately don't have reliable estimates on how many disabled people there are in the U.S., you know, let alone the kinds of health services that they might need. And you talked, Ellen, about people with disabilities not being identified, but they're also excluded from clinical trials and other activities that would allow us to capture important data and insights on this population.
00;10;09;26 - 00;10;30;28
And if you don't have good estimates, you know, in the absence of this kind of data, it can be more challenging to construct effective policies and programs for people with disabilities. And I was glad to see several articles really in this issue with recommendations on how we can do better.
00;10;32;11 - 00;10;58;04
So I know we're running short on time, but before we wrap up, I just wanted to point out two more things you'll find in Health Affairs this month. The first is we are so excited to be able to feature original artwork by people with disabilities. Thanks to artists from Art Enables, which is a gallery and vocational arts program in Washington, D.C., that makes it possible for people with developmental and cognitive disabilities to earn income from their original artwork.
00;10;58;26 - 00;11;22;08
And I also wanted to mention an article in our Leading to Health series this month that describes a really innovative employment program that's part of Tennessee Medicaid. And it's for people with intellectual and developmental disabilities. And it's called Employment and Community First Choices. And since having meaningful employment and the ability to earn a living wage are so critical for the health and well-being of people with disabilities.
00;11;22;15 - 00;11;24;26
I just wanted to point listeners to that piece as well.
00;11;25;11 - 00;11;53;00
And we also have two events coming up. So if you're a Health Affairs Insider, you can join us on October 17th for a Professional Development event about optimizing accessibility and health services research. And then on October 20th, we will be hosting our monthly Journal Club featuring a conversation with Dr. Susan Chapman, who published a study this month on the availability of personal care aids services in the US.
00;11;53;13 - 00;12;13;24
So tons of great stuff happening in conjunction with the October issue on disability and health. And thanks, Ellen. I think that's it for us. You know if you liked the episode? Go ahead and leave us a review. Subscribe to the show and of course, tune in next week.
00;12;14;20 - 00;12;29;07
Thanks so much, Leslie.